We are all in this together
Participating in Lupus Research
We are currently recruiting participants for several research studies. With the help of research projects like these, more people with lupus are able to live healthier and more active lives. Doctors are able to diagnose lupus earlier and use more effective therapies to treat patients. Because of the generosity of research participants, we are learning more about this disease everyday. Every person counts.
E-mail firstname.lastname@example.org for more information.
The Chicago Lupus Database was established in 1991 as a registry for people with lupus who are interested in research participation.
GENETICS and Lupus
Through a partnership with the University of Alabama and lupus centers around the world, we are currently engaged in research to examine genetic and environmental risk factors for organ damage in people with lupus. We are now recruiting Caucasian, African-American, and Hispanic men and women at least 19 years of age for this study. Study participation involves three annual visits that include a blood draw, urinalysis, and physical exam.
The purpose of this study is to develop a registry or database of information on a large number of newly diagnosed SLE patients who are followed by the 30 SLICC members over time. This registry will provide the long term follow-up of a large diverse population of patients using standard methodologies. This will allow researchers to determine the prevalence and nature of early atherosclerotic coronary artery disease in SLE and to identify associated risk factors.
NUgene is a clinical research project currently being conducted at NMH and NMFF. The goal of this project is to collect and store genetic samples (DNA) along with associated healthcare information to form a gene bank. This large bank of samples, currently at 9,600 and growing, is available to researchers who are working to identify genetic contributions to human disease. This allows the researchers to more easily obtain many samples at one time, facilitating genetic research so it can more quickly impact healthcare in the future. All samples and information are de-identified before distribution for research.
Participants in this study have the opportunity to provide Dr. Ramsey-Goldman with access to the information collected from participants through NUgene for research purposes. This will allow her to do additional research in the future on the role that genes play in lupus.
SOLVABLE: Heart and Bone Study
The purpose of this study is to find out the effects of lupus on blood vessels and on long-term bone conditions. Participants are women with lupus (cases) and women without lupus (controls) who complete three study visits over a 5-year period. Study visits include a carotid ultrasound, bone density test, x-ray of the heart, physical exam (cases), urinalysis, and blood testing (including glucose and cholesterol screening).
Note: Case recruitment for this study is complete. We are currently only recruiting women without lupus (controls) for this study using a randomized recruitment model.